consultant to write letter for emergency services...

Well, following the first obstructive episode, I suffered another two before seeing my consultant again.  On neither occasion was I actually sick, but there was the same waves of pain, nausea, and then eventually, and each time to my relief, persistent and uncontrollable diarrhoea!!

I was actually at the tale end of the diarrhoea stage during my appointment. My appointment wasn't actually very much help. The. consultant didn't actually say very much more than the nurse had told me on the phone. He explained where the strictures were, and told me that it was likely that surgery was the answer. I asked if there was a chance that humira would improve things. He told me it was best to start the wheels turning for surgery as first I would have an appointment with a surgeon and then I would be on a waiting list. If at any point it seemed that things had improved dramatically, thin I could always put my foot on the break.

I had a lot of questions about surgery, like how long was the waiting list, what did the procedure involve, what was the recovery time likely to be and so on.  He wasn't willing to answer any of these however as he isn't the surgeon and he thought it better I wait and get the answers from a surgeon when I see one.

The one thing the consultant did say however, which gave an idea as to how serious things had potentially become, was this. He said if I did suffer an episode where I was being sick, and I hadn't been able to keep anything down for 24 hours, then I was to call an ambulance.
He said not to worry about if I think it's an emergency. He said it is an emergency, and "don't let them (a and e) try and fob you off with ibs. Cut through the crap. Tell them you have Crohn 's, you have strictures and an obstruction and to get you down to derriford(his hospital), and get some fluids in you" he also said he would write me a letter to this effect that I could give to emergency services should the need arise. I was very pleased he told me this, as that first time I was scared, and yet I still want sure if it warranted calling an ambulance.

So now it's a case of waiting for a surgeon, and praying I don't have an emergency situation on the mean time!