So I gave my IBD nurse a call the day after my rather scary episode. She agreed that it would seem that I had suffered what she termed an obstructive episode. She said that if it had got to the point of vomitting, then this was cause for concern, and suggested that the disease had probably progressed. She advised that I stick to a 'sloppy' diet for the next five or six days. She suggested soups and jellies. I thought that's what I had been doing.
She apologised that I hadnt recieved a sooner consultants appointment, and said she would try and get me an earlier appointment.
The next day, I was rather surprised to hear from her again. She told me that she had just come out of the radiology meeting with the consultant and the radiologist, and they had been reviewing my small bowel MRI.
The news she had was actually a bit of shock. She told me that the small bowel was free of disease as we were aleady aware, but the scan also showed the top half of large bowel, and it appeared that there was more stricturing further up, past the point where the colonoscopy reached. This in itself did not surprise me, as I could tell that by the episodes of pain I was getting. What was a bit of a shock was that she said that with such a significant amount of stricturing it was unlikely that it was just inflammatory and some of it was more than likely fibrotic. This meant that it was likely I was going to require surgery at some point.
I've had ten years to get used to the fact that having crohn's was likely to mean I would need some surgery at some point. It still upset me to hear this however. Rather embarassingly, it made me tearful, and I was at work. I hate acting like a girl at work!
My colleague reassured me and told me she knew somebody who had had a bowel resection. It was straight forward, and they were much better for it. I know she's right, but it's still annoying to hear that the crohns had progressed that far. On the plus side, my consultants appointment was brought forward by a week!
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