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Friday, 24 January 2014

Time for more colonoscopies

So I saw my consultant yesterday.  I have been on prednisone for two weeks at 20mg, and I explained that although it was clearing my erythema, I wasn't so sure about my gut. She has told me to only reduce the prednisolone very slowly, and go back up if things worsen. She has booked me in for a colonoscopy, gastroscopy, and MRI of the small bowel. She wants to see if there is inflammation, and if there is, then how aggressive the disease is at the moment. This will determine whether the treatment is something such as azothioprine, or if I need to go back on to biologics.

In part I am pleased that this is the course of action we are taking. The colonoscopy, is a hassle with two days worth of bowel emptying to prepare for it, but at least we'll be able to see exactly what's going on.  She told me I'd be booked in for two to three weeks time. This may work out well as I'm on half term with school in three weeks.  Although having said that its a shame that whenever I get holiday it seems that I spend that holiday at the hospital!

Of course it may not fall in half term. I got an email from the ibd nurse today saying that the examinations would be a while away. She said to let them know if things got worse as we may have to temporise things with steroids. This is a bit of a blow
 I don't want to be on steroids any longer than I have to. I'm really hoping not to put on any extra weight!

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