I have been taking the mercaptopurine for three weeks now. I'm told it takes four to six weeks for the effects to be seen. I really hope that it does something!
Every day I feel like my flare up is getting worse! The fatigue seems to be improving thank goodness. Perhaps the iron tablets are having some effect here. My IBD nurse has advised me not to take more than 200mg of iron sulphate a day, as it has a tendency to affect the gut.
However, I am suffering headaches fairly regularly, my tummy seems to feel more uncomfortable more often if I do not stick to a low residue diet. I have also noticed that high fat also seems to upset me which I've never noticed before. Also, probably the most worryingly, more Erythema nodosum seem tho appear on my legs each day!
The pictures aren't brilliant, but you can see the biggest ones. I counted them today and that's sixteen! What worries me is the last consultant I saw suffered that those crohns sufferers who get Erythema, have an aggressive form of the illness. I have been taking a low dose of prednisolone, too try and keep them under control while I wait for the mercaptopurine and humira to start doing something. I started at 10mg, and then brought it down to 5mg. It looks like I'm going to have to move it back up to 10mg again. This is very annoying as they make me retain water, and put on weight. I should be grateful that even though I'm in flare I'm not losing weight. However I am actually quite a few pounds too heavy, and putting on more would definitely not be good for me.
So, this is the limbo I currently find myself in. I'm currently taking a biologic, an immunosuppressive, and a steroid, and as yet I haven't seen much improvement, and things seem to keeping getting worse rather than better. So, will I see an improvement before I next see my consultant in August? I'll let you know!
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